Mariela V. Pasquero, Fundación de la Hemofilia de Santa Fe, Rosario, Argentina
Luis C. Cinara, Facultad de Ciencias Médicas, Universidad Nacional de Rosario, Rosario, Argentina
Agustina M. Petracco, Fundación de la Hemofilia de Santa Fe, Rosario, Argentina
Daniel A. Magliaro, Fundación de la Hemofilia de Santa Fe; Facultad de Ciencias Médicas, Universidad Nacional de Rosario. Rosario, Argentina
Mauro R. Davoli, Fundación de la Hemofilia de Santa Fe; Facultad de Ciencias Médicas, Universidad Nacional de Rosario. Rosario, Argentina
Background: Hemophilia is an inherited bleeding disorder that requires multidisciplinary management to reduce long-term complications. Disease awareness may influence treatment adherence and clinical outcomes. Objective: To analyze the relationship between disease awareness and adherence to prophylactic therapy in patients with hemophilia. Material and methods: A review of assessment tools and strategies addressing psychosocial, educational, and economic barriers to adherence was conducted. Results: Higher disease awareness was associated with improved adherence, reduced bleeding episodes, and better preservation of joint function. Conclusions: Disease awareness is a key determinant of adherence in patients with hemophilia. Interventions that enhance patient self-management may improve long-term health outcomes.
Keywords: Hemophilia. Health knowledge. Treatment adherence.